Newcastle MP hosts the Childhood Eye Cancer Trust for their very first Parliamentary event

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23 May 2019

 

During World Retinoblastoma Awareness Week 2019, Paul Farrelly MP welcomed the Childhood Eye Cancer Trust (CHECT) for their first Parliamentary event. MPs from across the country met with children, young adults and their families affected by this rare cancer to hear their personal experiences. It also gave them the opportunity to learn how they can help raise awareness of the disease and the steps needed to improve early diagnosis. 

One child a week in the UK is diagnosed with retinoblastoma, a rare form of aggressive eye cancer, affecting babies and children under the age of six. Early diagnosis is essential in order to save a child’s eyes, sight and life. Sadly, more than half of children will have an eye removed to stop the cancer from spreading.

The Childhood Eye Cancer Trust works hard to raise awareness of the signs and symptoms of retinoblastoma with parents and healthcare professionals, in order to improve current delays in diagnosis which can have devastating impacts. 

The most common symptoms of retinoblastoma are a white glow in the eye (visible in certain lighting or a flash photo), and a squint. You may see a white glow in the eye, a white pupil or white reflection in a photo where a flash has been used, or when the child is in artificial light. At the event, representatives from the Trust used an interactive poster to demonstrate how the white glow can appear in a flash photo (see above).

In the next few days, Paul will be writing to opticians and GPs across Newcastle-under-Lyme to help promote further awareness of retinoblastoma. You can find out more about the illness by visiting CHECT’s website: www.chect.org.uk




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